Rare Disease Day is an annual, awareness-raising event co-ordinated by EURORDIS at the international level and the National Alliances of Patient Organisations at the national level.

Orphan Europe is pleased to announce that Normosang (human hemin) has received market approval, in Russia for the treatment of acute attacks of hepatic porphyria (acute intermittent porphyria, hereditary coproporphyria and variegate porphyria.
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