The aim of the Orphan Europe Academy is to provide healthcare professionals with the opportunity to increase knowledge, develop new ideas, and strengthen scientific collaboration. It achieves this by providing training and educational activities for healthcare professionals involved in the diagnosis and management of patients affected by rare diseases.

A Programme Committee (PC) comprising both experts in rare diseases and Orphan Europe members governs the Academy. PC members have specific responsibility for the overall strategy and proposing new courses. A course programme committee (CPC) is appointed for each course and has responsibility for designing the programme and liaising with speakers. The PC meets bi-annually; they endorse programmes put forward by the CPC to ensure consistency and balance.

Since 2000 the Academy has gained a reputation for its high-quality, innovative science education. A recent survey conducted by Orphan Europe shows that participants recognize that they increased their clinical and basic science knowledge which resulted in improved diagnosis and management of patients.

Orphan Europe Academy proposes courses for a vast range of medical specialities including metabolic specialists, paediatricians, hepatologists, neurologists, movement disorder specialists, neonatologists and biochemists.

For more information, please see: www.orphan-europe-academy.com