Patient Associations

Orphan Europe is committed to establishing strong alliances with patient’s organisations worldwide to achieve our common goal of building knowledge, accessing diagnosis, providing treatment and improving the prevention of rare diseases. Orphan Europe and patient’s organisations collaborate in the following areas:

  • Funding of patient organisation core activities or events
  • Development and dissemination of information for patients and their families
  • Advocating for access to treatment
View complete list of patient organisations that we supported in 2010
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